Patient Services

Patient Advocacy

Dr. Sohail Masood, Founder of Dysimmune Diseases Foundation (DDF), has been a patient advocate for more than 30 years. In the late nineteen eighties, when Dr. Masood got involved with neurologists treating neuromuscular
diseases, there was a very limited number of drugs available to treat these diseases. Dr. Masood worked closely with neurologists trying Intravenous Immune Globulin (IVIG) to treat these diseases. This gave rise to a new wave of
safer and more effective drugs previously unavailable to patients. Since IVIG was not initially approved for these diseases, Dr. Masood worked very hard on behalf of patients, and won the rights of neuromuscular and dermatological patients to receive IVIG treatments. Over the last 30 years, he has been instrumental in changing the medical guidelines and insurance policies of Blue Cross, Blue Shield, Medicare and Medicaid (to name a few), when it came to these diseases and the use of IVIG. He got CIDP, Myasthenia Gravis, and Pemphigus diseases approved for coverage/payment from Medicare, Medicaid and various commercial insurance companies for his patients over the years. 

As the owner of Crescent Healthcare, Inc. in the 1990s, when there was a severe shortage of IVIG, Dr. Masood donated IVIG to the National Institute of Health (NIH) so that trials for Stiff Person Syndrome could be completed. 

DDF helps to further the passion of its founder, Dr. Sohail Masood, in helping patients with these diseases. He is also establishing a fund to help the patients meet their financial obligations for copays/deductibles, if they qualify.

Frequently asked Questions

Below are quick answers to some of our most frequently asked questions.

  • What is dysimmune?
    “Dysimmune” means dysfunctional immune system (also known as autoimmune system). Some dysimmune diseases include immunological, neuromuscular, dermatological diseases, and neurological disorders such as Alzheimer’s and Down Syndrome.
  • What is Dysimmune Diseases Foundation(DDF)?
    DDF is a non-profit 501(c)(3) organization established to support and promote quality patient care through supporting the financial needs of patients and support of clinical trials.
  • How can I reach the DDF?
    Click here!
  • How can I donate?
    All donations to DDF are tax-deductible. You can donate using a credit card, PayPal account, or an electronic check. All options are highly secured, and your information will not be shared with anyone.